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What to Do in the First 30 Days After Your Child’s Autism Diagnosis
A simple, supportive guide for parents and caregivers written by Mitch Leppicello, LICSW
First, take a breath.
If your child was just diagnosed with autism, you may be feeling overwhelmed, unsure, or even relieved to finally have answers. All of that is normal, and you don’t need to figure everything out today. This guide will help you focus on what actually matters in the first 30 days from my 35+ years of clinical experience working with families.
Step 1: Give Yourself Time to Process
Before you take action, pause.
Examples of what you may be experiencing:
- Shock or confusion
- Grief or worry about the future
- Relief that things now make more sense
All of these reactions and feelings are completely normal.
What matters most right now is to hear that you don’t need to “fix” anything today. Your child is the same child you knew yesterday.
Step 2: Focus on Understanding, Not Urgency
It’s easy to feel pressure to get everything sorted, to start researching, and to start multiple therapies immediately. You may have been up late at night, Googling question after question. Information doesn’t always mean more clarity. Instead, here’s what I recommend you DO focus on this week:
- Understanding your child’s needs
- Observing their strengths
- Learning how they experience the world
“Understanding to Action” is a phrase I coined after working with individuals with Autism in my clinical practice. The more we understand Autism and each person’s unique abilities, the better we are able to support them. This is an ongoing process; as your child grows, so will their needs.
Step 3: Identify Your First Supports
Start with a few key supports and add in more as your child needs and as your time allows, such as:
- A primary therapy provider (speech, OT, ABA, etc.)
- Your pediatrician or developmental specialist
- A point person (case manager, coordinator, or school contact if available)
If you’re unsure where to start, ask your provider what they recommend you focus on first.
Step 4: Build a Simple Daily Structure
Children on the autism spectrum often do best with predictability, clear expectations, and consistent routines, as you’ve likely experienced already.
My tips:
- Keep mornings and evenings consistent
- Use simple visual or verbal cues
- Give extra time for transitions
Step 5: Learn How to Respond, Not Just React
Remember: behavior is communication.
Instead of asking: “How do I stop this behavior?”
Try asking: “What is my child trying to tell me?”
Focus on:
- Emotional regulation
- Communication attempts
- Sensory needs
This shift alone can change your day-to-day experience.
Step 6: Don’t Do This Alone
One of the most important things you can do is connect with others and develop a support system. That may include:
- Parent support groups
- Other families with similar experiences
- Trusted professionals
Whatever you have time for, but do prioritize time in your family’s schedule to get connected with others.
Step 7: Start with One Clear Next Step
You do not need a perfect long-term plan right now. Instead, choose one next step:
- Schedule an evaluation or therapy intake
- Set up a simple daily routine: consider using a visual schedule to help cue your child what the expected behaviors and routines are in your life.
- Learn one new strategy to support your child
Progress happens step by step. You are not expected to become an expert overnight. What matters most is your relationship with your child, your willingness to learn, and consistency. You are already the most important part of your child’s support system.
If you’re wondering, “What do I do next?”
The CALM Compass: Navigating Neurodiversity was created to give parents clear, practical strategies you can use at home.
My goal in developing the program is to help you create a better understanding of behavior and communication, and give you tools to support emotional regulation and daily challenges your child may be facing.
It doesn’t replace therapy or in-person supports. It’s a structured, easy-to-follow online program designed specifically for parents and caregivers from the point of autism diagnosis or anywhere in between.
You can start anytime and go at your own pace because it includes lifetime access to the materials.